I am passionate about the right involvement in all aspect of research of any kind. Being a lay adviser means I am pursuing my passion and contribute in a small way to society and the NHS.
My background is in creating systems for the collection of data for research and therefore with my accumulated personal experience of the health service this knowledge is put to good use; by ensuring written information and communication is digestible for example, or contributing to panel discussions on specific projects to make the research more relevant to end users. I am a lay adviser at various levels such as Ethics Committees, PPI forums and other groups and demonstrate as a lay trainer how my involvement has influenced the various stages of the research cycle to researchers, clinicians and patients.
Harry C. Hall
Harry’s a successful Marketing professional with a background in Advertising and Design. Bowel Cancer in 2002 motivated involvement with the treatment unit’s User Group. A founder member of West London Cancer Network Partnership Group and ultimately chair, he also sat on the Network’s Executive Board. He joined senior management at NHS Training for Innovation in 2007, involved in Patient Safety projects including the National Early Warning Score (NEWS).
Harry represented cancer patients on the London Cancer Alliance (LCA), Clinical Board and Colorectal Cancer Pathway Group. He is a member of the Imperial College & Partners PPI Research Forum and the Cancer Research UK (CRUK) Imperial Centre PPI Group. Harry chairs the North West London Colorectal Cancer Patient Experience Group
(CCPEG) and is a Patient Advocate with the CRUK Grand Challenge “Rosetta” research project collaboration, led by the National Physical Laboratory.
Jill has been actively involved in PPI at Imperial for more than eight years. She responded to an advert seeking interested people and is still a member of the Patient Safety Translational Research Centre (PSTRC) PPI group.
Jill was initially a physiotherapist in local NHS trusts specialising in orthopaedics and rheumatology. She later moved to a lecturing role at Brunel University, teaching and mentoring undergraduates. Until retirement she was also involved with other health professionals and patients in rheumatology in Europe.
Her interests in PPI are around rheumatology and the patient experience of health care.
I joined NIHR Imperial BRC Public Advisory Panel because I believe that through my knowledge of the research process together with an understanding of the commercial world, I can provide valuable input into the development of research projects.
I was a lay member of Brent Research Ethics Committee for 10 years; review grant applications for the National Institute of Health Research and provide input as a patient member of London In-Vitro Diagnostics Co-operative. I am also an independent member of the Statinwise Trial Steering Committee. Within the NHS, I am a lay member of the Advisory Committee for Clinical Excellence Awards, London North West; patient representative on the NHS Digital E-Referrals Advisory Board and lay partner of Imperial College Healthcare NHS Trust.
Marney Williams has a keen interest in research, and extensive PPI experience. She is currently a co-investigator on three studies, and on the steering committee of three others. She reviews applications for NIHR, the Stroke Association, the British Medical Journal, and sits on an NHS ethics committee.
Marney has been involved locally and at conferences in teaching professionals and the public about PPI. She helped create the Patient/Carer version of the Clinical Guidelines for Stroke at the Royal College of Physicians (RCP).
Marney had a stroke in 2009, and lives in West London. She volunteers on a Stroke Unit, offering conversation practice to patients with aphasia.
Retired as Deputy Official Receiver with the Insolvency Service, Department of Trade and Industry, got involved with the REC from an advert at my local gym.
Have accountancy and legal background; I am fluent in English, three Indian languages and some Arabic. My experience in the medical and research fields comes being:
- Lay Plus Member of London, Brent Research Ethics Committee (REC) since 2009
- Member of Collaborations for Leadership in Applied Health Research and Care (CLAHRC)
- Founder Member of Central Middlesex Hospital Rheumatology Patient Group for over eight years
- On Imperial BRC PPI (now Public Advisory) Panel over two years, including Assessing Small Projects Research Grants
My interest in the Cardiovascular Theme comes from my partner having an Implantable Cardioverter Defibrillator (ICD) implant some 2 years back.
A diagnosis of emphysema caused me to support others with respiratory conditions, so I joined the PPI Committee for the Royal Brompton in 2004, which became the Local Involvement Networks (LINks), and finally Healthwatch Westminster.
I am passionate about patient involvement and am on the NHS Central London Clinical Commissioning Group (CLCCG) User Panel, NIHR Collaborations for Leadership in Applied Health Research and Care (CLAHRC), Imperial and Central London Community Healthcare (CLCH) Quality Steering committees and am an advocate of antimicrobial resistance (AMR). I sit on advisory boards for European Patient Ambassador Program (EPAP) and Westminster Community Network (WCN). I have an extensive local network.
Kings Fund seminars and the NHS Patient and Public Voice (PPV) provide organisational changes and as Chair of Breathe Easy provides me with patient experience.