IHKB: Access Health Data

Access Health Data via IHKB

Imperial College London AHSC 23 09 2013

The IHKB is a central resource that helps researchers discover and access secure patient data and support from Imperial College Healthcare NHS Trust.

It streamlines access to clinical notes, demographics, scans, medication history, blood results and other medical records, enabling efficient and responsible use of health data for research.

 

Overview

Accessing Health Data from IHKB?

The IHKB is a centralised gateway for accessing curated, high-quality health datasets collected across ICHT. Designed to support clinical and academic research, this platform enables secure, ethically governed access to pseudoanonymised health data for approved projects. Researchers can discover available datasets, understand existing data structures, and request data for new datasets. Enabling researchers to navigate the application process with transparency and support. By facilitating responsible data use, the IHKB empowers innovation in healthcare, accelerates research timelines, and helps translate insights into improved patient outcomes.

AI ECG

 

Service Benefits

Benefits to Researchers

  • Provides a single point of access to health data tools, services, and governance guidance across Imperial College Healthcare NHS Trust.
  • Saves time by streamlining data discovery and application processes.
  • Supports secure, ethical, and compliant use of patient data in research.
  • Enhances the ability to create robust datasets at scale and resources to plan future studies more effectively.
  • Promotes collaboration and knowledge sharing across research teams, trusts and academic institutions.

Benefits to Patients

  • Helps patients contribute to research that improves care for others with similar health conditions.
  • Provides a secure, respectful, minimally demanding way for Patients to support health and social care research.
  • Enables patients and their experiences to help with future medical and scientific developments.
  • Empowers patients to play a role in advancing medical understanding through their anonymised, ethically governed data.
  • Ensures research reflects the real-world experiences and needs of diverse communities.

 

How It Works

  1. Patients consent to their medical records being used for research.
  2. Researcher submits a data access request to the access committee, specifying data types required and inclusion/exclusion criteria of patient demographics
  3. Access Committee reviews the request
  4. Patient information was searched and pseudoanonymised
  5. Pseudoanonymised Data securely transferred to researchers.

 

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