Patients are at the heart of the NIHR Imperial BRC’s mission – ensuring those patients are involved in the activities undertaken within the BRC is a key priority for us. Patients, and the wider public, bring a wealth of experience and provide valuable perspectives on the way that research is designed and delivered. Our strategy for involving and engaging with patients and the public is based around building capacity and expertise in this important area, collaborating with other organisations locally and nationally, and demonstrating the impact of our Patient and Public Involvement and Engagement (PPI/E) activities.
Produced in collaboration with our NIHR infrastructure partners at the Collaboration for Leadership in Applied Health Research and Care for North West London, the Royal Brompton Cardiovascular Biomedical Research Unit and the Royal Brompton Respiratory Biomedical Research Unit, the short film below documents the experiences of our patient volunteers that have partaken in the research process.
Leadership of our strategy for PPI/E is provided by the Imperial Patient Experience Research Centre (PERC). PERC is a partnership between the BRC and the Imperial College Healthcare Charity, promoting participatory approaches to improving healthcare and biomedical research. It comprises academic expertise in epidemiology, social science, medicine and nursing to and address research questions relevant to the BRC Themes. For example, PERC explores how research participation affects patient experience, how personalised medicine translates into patient pathways, and inequalities in research participation. PERC is obtaining a deep understanding of how research translates into patient benefits in the real world and results are used with patients and staff in the process of co-designing care pathways within the NHS.
Patient involvement is achieved in a variety of ways, for example, through membership of clinically-specific patient panels and involvement groups, via our over-arching Patient Advisory Board, input on specific clinical trials of new techniques and treatments, or design of a new patient consent form currently being rolled out across the Trust.
NIHR publish all the relevant PPIE sections from the annual reports provided by all NIHR-funded infrastructure.