Patients and the public are at the heart of the NIHR Imperial BRC – ensuring their involvement, engagement and participation in our research is a key priority for us. Patients and the public bring a wealth of experience and provide valuable perspectives on the design and delivery of research. Successful translational research from the research bench to the patient’s bedside relies on the involvement of patients and the public. New diagnostics and treatments must also be practical, acceptable and effective for those who will benefit from them, to ensure improved care pathways and treatment can be delivered.
Patients and the public can get involved in our research in many ways.
Patient and Public Involvement
We are looking for enthusiastic and motivated members of the public who live or work in North West London to get involved in our research.
What does being “involved” in research mean?
“Public involvement” is when the public* is actively involved in specific research projects or research in general to help shape the research. Research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. “Involvement” does not mean being a subject or participant in a research study or clinical trial.
“Public engagement” is providing and disseminating information and knowledge about research to the public including discussing and consulting the public.
*Public includes patients, potential patients, carers and people who use health and social care services as well as people from organisations that represent people who use services. (NIHR INVOLVE)
What opportunities do we have available?
Public champions – We are looking for up to 10 Public Champions. Each Imperial BRC research Theme has a Patient and Public Involvement and Engagement (PPIE) Champion Pair made up of a public champion and a Theme champion (who will usually be a researcher from the Theme). We will provide support and training. PPIE experience is preferable but not essential – just a passion to make a difference in research!
Being involved in Imperial BRC Research – We are looking for up to 20 people to work with Imperial BRC researchers on research projects in their subject/disease areas. Support and training will be provided by the Imperial BRC Patient Experience Research Centre (PERC). PPIE experience is not essential – just a passion to make a difference in research!
Public Chairperson – We are looking for one person to be the Public Chairperson of the Imperial BRC Public Advisory Panel which has 4 meetings per year. Attendance at another meeting held quarterly is also required. Support will be provided by PERC.
The Patient Experience Research Centre (PERC) offers PPI training for both members of the public and researchers working on our research Please see PERC’s website for further details and to register for a training session. Please email email@example.com with any questions.
We have some exciting, innovative PPIE initiatives taking place including the PPI Café which was piloted at the Imperial Festival 2018. Please email firstname.lastname@example.org to get involved.
PPI Café ‘baristas’ at the Imperial Festival 2018
PERC holding a stand at the Queens Park Rangers Football Club Community Day