Schedule of updates
May 2023
Version 1
This strategy sets out the National Institute for Health and Care Research (NIHR) Imperial Biomedical Research Centre’s (BRC) vision, aims and objectives for public involvement, engagement, and participation (PPIEP; defined in Appendix A) in our research over the next five years. It details what we want to achieve, how we will do this and how it will be monitored and evaluated.
Contents
Purpose
Our Vision
Our Aims
Public voices at the forefront
- To embed public involvement within BRC Theme management and governance
- To involve the public in BRC projects and activities
Diversity is vital for science
- To engage and involve communities in our population which are underrepresented and under-served in research
- To promote equality, diversity, and inclusion (EDI) in public involvement, engagement, and participation in research
Training and building capacity
- To build capacity and confidence in BRC researchers to enable them to involve the public in research
- To build capacity and confidence in the public to enable them to involve the public in research
Partnership and collaboration are key
- To ensure public involvement activities are systematically evaluated and opportunities for reciprocal feedback are provided
- To embed the UK Standards for Public Involvement across BRC Themes and projects
- To collect and share the impact of public involvement
Implementation of this strategy
Monitoring our progress
Resources
- Guidance, Resources and Training
- Existing public networks
- Funding to support involvement and engagement
Partnerships and collaborators
Appendix A: Definitions
Appendix B: The BRC’s 14 research themes
Appendix C: BRC Outline Strategic Plan
Appendix D: Our PPIEP action plan
Purpose
The BRC’s overall objective is to develop new treatments, diagnostic tests and medical technologies through collaboration across different scientific fields for the benefit of the public, and in particular the population of the boroughs of Brent, Ealing, Kensington & Chelsea, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow and Westminster in North-West London (our population).
The public are at the heart of the BRC’s overall strategy (and the common threads that guide it) and their involvement as partners in our governance and research activities is a key priority across our 14
research Themes (listed in Appendix B). These research themes are linked by the following common threads:
- Early diagnosis by speeding up diagnosis and development of new tests
- Personalised medicine by tailoring treatment to an individual patient’s specific needs
- Digital health (using health data and technologies to benefit healthcare) by using computer technologies to provide healthcare professionals with more accurate information for better treatment and to allow patients to be more involved in managing their own health
- Collaboration between different scientific fields to solve health challenges
This strategy is underpinned by collaborative relationships with Imperial College Healthcare NHS Trust (ICHT) and in particular, ICHT’s Strategic Lay Forum (SLF) established in November 2015. The SLF’s role is to ensure that patients are at the centre of ICHT’s care and to support it in becoming user-focused by listening, understanding, and responding to patient and community voices and insights.
Our Vision
Our vision is to achieve inclusive and accountable public involvement and engagement that is embedded across the BRC, leading to improvements in health and wellbeing most relevant to the needs of our population.
Our Aims
Our 10 aims for PPIEP for the next five years are aligned with the Overall Strategic Plan of our BRC (see Appendix C for our submitted Overall Strategic Plan). To achieve these PPIEP aims we have set out our objectives in our Action Plan at Appendix D.
Public voices at the forefront
-
To embed public involvement within BRC Theme management and governance
We will include the public within Theme management and overall BRC governance to ensure progress against this strategy is monitored and that PPIEP is a priority. A group of Community Partners will provide each Theme (and the Patient Experience Research Centre (PERC)) with strategic PPIEP advice and at least one from each Theme will attend relevant Theme management meetings. Two Community Partners from across all Themes and PERC will be represented at relevant BRC governance meetings and insights flow between the Community Partners and ICHT SLF due to shared membership.
-
To involve the public in BRC projects and activities
We will ensure PPIEP (and where research allows, co-production) is considered from the outset of our research and involves those with lived experience of the research area to ensure the research is accountable, accessible, and relevant to the population affected. Researchers will be expected to plan PPIEP from the start of each project using a planning tool and report progress against this plan. PERC and Community Partners will facilitate the identification of the public to involve in projects and activities.
Diversity is vital for science
-
To engage and involve communities in our population which are underrepresented and under-served in research
We will identify which communities in our population are underrepresented and under-served according to our BRC Equality, Diversity & Inclusion (EDI) Strategy and actively seek to build reciprocal relationships with these communities through different approaches for the benefit of both our population and research. We will share PPIEP opportunities widely across our population through Community Partners and other public networks.
-
To promote equality, diversity, and inclusion (EDI) in public involvement, engagement, and participation in research
We will collect and monitor demographics (age, ethnicity, gender, geographical location and disability data) of those we involve to understand whether we are including people from diverse backgrounds. We will ensure the impact of collecting this data are understood and that our public contributors are involved in the process. For some of the public and for certain communities collecting data on protected characteristics like pregnancy, religion or belief and sexual orientation may negatively impact involvement and research participation.
Training and building capacity
-
To build capacity and confidence in BRC researchers to enable them to involve the public in research
We will ensure that PPIEP training, support and resources are available to all BRC researchers. BRC researchers will be required to undertake public involvement training and each Theme will have an assigned Public Involvement Officer to guide and facilitate public involvement and access to PPIEP resources through PERC.
-
To build capacity and confidence in the public to enable them to be involved and take part in our research
We will ensure that PPIEP training, support, mentoring and resources are available to the public we involve. Each Theme will have an assigned Public Involvement Officer to guide and support public contributors’ involvement and facilitate access to PPIEP resources through PERC.
Partnership and collaboration are key
-
To collaborate with key stakeholders locally and nationally undertaking PPIEP in health research
We have strong relationships with ICHT including the Insight and Experience team working on priority areas within our population. The ICHT SLF has been co-producing ICHT projects within the ICHT’s public involvement strategy for many years. Community and public partners are shared with ICHT to enable insights and learnings to be combined in a timely manner. We will also collaborate with other local and national stakeholders undertaking PPIEP in health research to ensure our population benefits from sharing learnings, addressing common challenges more effectively, reducing duplication and costs and maximising cross-cutting activities. We will share generously and facilitate and participate in local and national PPIEP networks to do this.
Reflection and evaluation
-
To ensure public involvement activities are systematically evaluated and opportunities for reciprocal feedback are provided
We will facilitate the provision of feedback by researchers and the public as part of systematically evaluating public involvement. This will inform our understanding of the impact of public involvement on: research; researchers; and the public, and provide learning for future public involvement. Researchers will be expected to feed back to public contributors on their input and public contributors will be provided with opportunities to share their reflections on being involved.
-
To embed the UK Standards for Public Involvement across BRC Themes and projects
The UK Standards for Public Involvement will be included in all public involvement tools, resources, and training facilitated by PERC. This will ensure that BRC researchers are aware of these standards and comply with them.
-
To collect and share the impact of public involvement
We will collect information on the impact of public involvement on: research; researchers; and public contributors through systematic completion of: an impact collection tool; and public involvement log. We will facilitate opportunities to share impact of public involvement to promote future public involvement and share learnings, for example, through blogs and an annual showcase celebrating public involvement.
Implementation of this strategy
a) Implementation and delivery of this strategy is the responsibility of the BRC Theme leads on behalf of the BRC Director with support from the Imperial Patient Experience Research Centre (PERC) (which is a core facility of the BRC). This strategy is underpinned by social research in translational medicine which PERC has conducted since 2011, investigating inequalities in participation focusing on underrepresented and under-served communities, the impact of research on patient experience, and how precision medicine affects care pathways. This strategy has been co-developed with public partners.
b) PERC will provide day-to-day PPIEP support by working with two nominated PPIEP leads in each of the BRC themes (listed at Appendix B) to implement this strategy. Equality and diversity in PPIEP will be measured and monitored with reference to the BRC Equality Diversity and Inclusion Strategy 2022 to 2027.
Monitoring our progress
a) PPIEP activity and impact in each Theme will be monitored by the Theme’s strategic PPIEP steering group of Community Partners (this approach has been co-developed through learnings from previous BRC programmes). One Community Partner from each Theme PPIEP steering group will attend relevant Theme management committee meetings to
report on progress against this strategy and ensure PPIEP is considered in Theme governance. Community Partners attending Theme management committee meetings will report their Theme’s progress against this strategy to two Community Partners. These two Community Partners will attend relevant meetings of the following groups to report all Themes’ progress against this strategy and ensure PPIEP is considered in BRC governance:
- BRC Executive Committee meetings; and
- the Imperial College Healthcare Trust (ICHT) Strategic Lay Forum (SLF) meetings. The Strategic Lay Forum reports to the ICHT Executive and Board.
b) PERC will also have a strategic PPIEP steering group of Community Partners (PERC Community Panel) to advise on PERC’s approach to community outreach and engagement, the insights from which will benefit all 14 Themes.
c) This strategy will be reviewed annually in collaboration with our Community Partners as the Community Partner framework evolves.
Resources
Guidance, Resources and Training
a) PERC has a Partnerships and Training Manager and three public involvement officers tasked with providing PPIEP support, advice, and training to BRC Theme researchers and public contributors involved in BRC research.
b) PERC has extensive online PPIEP resources to support and guide public involvement in research including a
blog of good practice PPIEP examples, template documents, guidance, and online training courses (suitable for researchers and some members of the public).
Existing public networks
a) PERC manages a number of public networks through which members of the public can hear about PPIEP
opportunities.
Funding to support involvement and engagement
a) Each BRC theme has budget for its own PPIEP activities to be paid in accordance with the NIHR Payment Guidance for Researchers and Professionals (August 2022). PERC has budget to undertake cross-Theme BRC PPIEP activities and events where PPIEP is showcased and celebrated.
Partnerships and collaborators
We continue to work in partnership with the Imperial Academic Health Science Centre (AHSC), including the Royal Marsden BRC, to coordinate PPIEP activities (where relevant) and share generously. We will continue our collaborations with:
- North-West London (NWL) Integrated Care System and its constituent members including, Central and North-West London NHS Foundation Trust and West London NHS Trust
- NIHR funded organisations in NWL including the London In-Vitro Diagnostics Co-operative, NWL Applied Research Collaborative (ARC), Imperial Clinical Research Facility, Imperial Clinical Trials Unit (ICTU), NWL Clinical Research Network (CRN), NIHR Imperial Patient Safety Translational Research Centre (PSTRC), Translational Research Collaborations (TRCs), Health Informatics Collaboratives (HICs), Experimental Cancer Medicine Centres (ECMC)
- National BRC and Health Protection Research Units (HPRU) PPIEP Leads networks
- BRC Qualitative Researcher Networking Meetings
- BRC Polygenic Risk Score Public Involvement Group
- Health Data Research UK Alliance
- Generation R Alliance
- Third sector and NWL community organisations including patient charities and groups
- Industry
- Local government
Appendix A: Definitions
We use the National Institute for Health and Care Research (NIHR) definitions for public involvement, public engagement and public participation in research as follows:
Public involvement (sometimes referred to as Patient and Public Involvement (PPI)) is defined as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. It is an active partnership between patients, carers and members of the public with researchers that influences and shapes research.
Public engagement is defined as where information and knowledge about research is provided and disseminated (shared).
Participation is defined as where people take part in a research study.
These different activities, public involvement, public engagement and public participation, are often linked and, although they are separate, they can complement each other.
Public
When using the term ‘public’ the NIHR includes patients, potential patients, carers and people who use health and social care services as well as people from specific communities and from organisations that represent people who use services. Also included are people with lived experience of one or more health conditions, whether they are current patients or not.
Under-served group
The definition is highly context-specific with no single definition; it will depend on the population, the condition being studied, the question being asked by research teams, and the intervention being tested. Some key characteristics common to several under-served groups are:
- Lower inclusion in research than one would expect from population estimates
- High healthcare burden that is not matched by the volume of research designed for the group
- Important differences in how a group responds to or engages with healthcare interventions compared to other groups, with research neglecting to address these factors (NIHR INCLUDE Project)
Appendix B: The BRC’s 14 research themes.
Each Imperial BRC Theme has two nominated PPIEP leads as set out below:
| BRC Theme | PPIEP Academic Lead | Additional PPIEP Lead |
|---|---|---|
| Biomedical Engineering | Anthony Bull/ George Hanna (TBC) | TBC |
| Brain Sciences | Anne Lingford-Hughes (TBC) | Lina Aimola/Sophie Horrocks (DRI) |
| Cardiovascular | Graham Cole | Fiyyaz Ahmed-Jushuf |
| Digestive Diseases | Horace Williams | John Thomas |
| Digital Health | Erik Mayer | Sarindi Aryasinghe |
| Immunology | Michelle Willicombe | Anjli Jagpal |
| Infection & Antimicrobial Resistance | Graham Cooke (TBC) | TBC |
| Metabolic & Endocrine | Waljit Dhillo, Tricia Tan (TBC) | TBC |
| Metabolic Phenotyping | Josephine Bunch (TBC) | TBC |
| Multiple Long- Term Conditions | Ioanna Tzoulaki | Laura Downey |
| Pregnancy & Prematurity | Phil Bennett, Neena Modi (TBC) | Lynne Sykes |
| Respiratory | Louise Fleming | Shauna McKibben |
| Social, Genetic & Environmental Determinants of Health | Helen Ward | TBC |
| Surgery and Cancer | Iain McNeish | Kelly Gleason |
Appendix C: BRC Outline Strategic Plan
The NIHR Imperial Biomedical Research Centre (BRC) works closely with providers of medical and social care, and our diverse local communities, across North-West London to improve the health of more than 2 million people through scientific research.
Research linked by common threads
The BRC supports research across 14 Themes, linked by four common threads:
- Early diagnosis — developing new tests and improving current testing to speed up diagnosis and allow earlier treatment
- Precision medicine — tailoring treatment to a patient’s specific needs to improve outcomes
- Digital health — using computer technology to provide clinicians with more accurate information for better treatment and allow patients to manage their health
- Convergence science — bringing different scientific fields together to provide new perspectives and solve complex health research challenges
Partnership and collaboration are key
The Themes are designed to respond to the most pressing health needs of our communities. They build on our existing strengths, partnerships and facilities. Central to this is the Academic Health Science Centre (AHSC), a partnership between Imperial College Healthcare NHS Trust, Imperial College London, Royal Marsden NHS Foundation Trust, Institute of Cancer Research and Chelsea and Westminster Hospital NHS Foundation Trust.
The AHSC is part of the North-West London Integrated Care System (ICS), a partnership between organisations providing health and social care to co-ordinate services and reduce inequalities. The BRC will continue proven collaboration with local NHS partners and maximise links between Imperial College London and Imperial College Healthcare NHS Trust. We work with a wide network of collaborators across the UK to ensure that our research means innovation in care for local populations, nationally, and with international impact.
Patient and community voices at the forefront
Patients and community partnerships are essential, enabling us to continue improving health outcomes and ensuring that research is shaped by the populations whose health we seek to improve. Projects such as those furthering understanding of health impacts of pollution and community support for vulnerable adults link to priorities for our local boroughs in North-West London. The BRC is committed to providing all patients, carers, and communities with opportunities to take part in research through engagement, involvement or participation opportunities.
Diversity is vital for science
We believe diversity is crucial for success and the BRC will be underpinned by our Equality, Diversity and Inclusion
Framework and our new EDI Strategy 2022-2027 to ensure all research activity represents the communities we serve. We work closely with staff networks to improve equality of access to opportunities and have identified
immediate issues to tackle, such as establishing links with networks for Black healthcare professionals, providing support for female academics and tailored training for non-medics.
Training our wider team
Education is central to the BRC vision. Funding and training opportunities will be provided for healthcare professionals to develop their careers in research through the Clinical Academic Training Office. We will emphasise opportunities for nurses, midwives and allied health professionals, such as physiotherapists and occupational therapists, to engage with the BRC’s vibrant research culture, offering access to state-of-the-art facilities and dedicated research time.
Appendix D: Our PPIEP action plan
Set out below are the objectives we will undertake to achieve our 10 PPIEP aims, how we will achieve these objectives and how we will measure our progress in achieving them.
-
To embed public involvement within BRC Theme management and governance
| What we will do (who) | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Implement a strategic PPIEP group for each Theme | Recruit approximately 6 Community Partners for each Theme with lived experience of Theme research areas and community links across our population who will:
(Theme PPIEP Leads with support of PERC) |
Record:
(Theme PPIEP Leads with support of PERC) |
| b) Implement public involvement representation in the management of each Theme | Identify at least one Community Partner to attend relevant Theme Management meetings to report on progress against this strategy and ensure PPIEP is considered in Theme governance
(Theme PPIEP Leads with support of PERC) |
Record:
Review 6 monthly:
Collect feedback on management meeting involvement 6 monthly from Community Partners and Theme leads/Theme PPIEP Leads (Theme PPIEP Leads with support of PERC) |
| c) Implement public involvement representation in overall governance of the BRC | Appoint two Community Partners to attend relevant BRC Executive and Strategic Lay Forum (SLF) meetings to report Themes’ progress against the strategy, share learning, and ensure PPIEP is considered in BRC governance
(BRC Office/ICHT with support of PERC) |
Record
Review 6 monthly:
Collect feedback on involvement in governance meetings 6 monthly from Community Partners, Theme leads, and BRC Executive and Strategic Lay Forum Chairs (BRC Office, ICHT and PERC) |
| d) Implement public representation on BRC research governance committees | Recruit at least one public contributor to sit on each BRC research governance committee to ensure PPIEP is considered
(BRC Office/research governance committee chairs) with support of PERC) |
(PERC) |
-
To involve the public in BRC projects and activities
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Include PPIEP (and co-production where the research allows) in BRC Theme projects | BRC researchers are expected and supported to complete an online Public Involvement Planning and Impact tool (developed by PERC) at the start of each project or pre-funding application
(BRC theme leads & BRC Researchers) |
Record number of Planning and Impact tool forms completed (review every 3 months)
(PERC) |
| Theme PPIEP leads to co-design public engagement events and activities with Community Partners
(Theme PPIEP leads & Community Partners) |
Record number of public engagement activities which have been co-designed with Community Partners (review annually)
(BRC Office with support of PERC) Record
(PERC) |
|
| Require Theme PI/PPIEP leads to include PPIEP progress for each Theme project in annual reporting to BRC Office
(BRC Office) Include questions about PIE in BRC Theme pilot project application forms (BRC Theme Leads) |
Theme reporting to be reviewed annually by PERC and the Theme Community Partners against this strategy
(PERC/Community Partners) Record how many Theme pilot project application forms ask about PIE. (Review 6 monthly) (BRC Office) |
|
| b) Undertake research projects prioritized by our population | BRC researchers are expected and supported to involve the public in identifying or prioritizing research questions
(BRC researchers with the support of PERC) |
Record how many research projects were identified through public involvement (Theme PPIEP Leads) |
| c) Identify public contributors to involve and engage in BRC projects and activities | Maintain public networks through which researchers can advertise PPIEP opportunities and the public can hear about them
(PERC) BRC researchers utilise public and Community Partner networks to advertise PPIEP opportunities. (BRC Researchers) |
Record number of communications sent to public networks with PPIEP opportunities (reviewed annually)
(PERC) Record number (and demographics, if provided) of public contributors involved in each BRC research project (reviewed 6 monthly) (BRC Researchers) |
-
To engage and involve communities in our population which are underrepresented and under-served communities in research
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Build trust and reciprocal relationships with underrepresented and under-served communities | Understand which groups in our population are underrepresented and under-served (linked which research area if possible) in accordance with the BRC Equality Diversity & Inclusion (EDI) strategy
(BRC EDI Oversight Committee) |
Review 6 monthly those identified as underrepresented and under-served on which to focus engagement activity (BRC EDI Oversight Committee) |
| Establish a specific Community Partner group with strong links to underrepresented communities (PERC Community Panel) to advise on community outreach to inform our approach
(PERC) |
Record advice provided by the PERC Community Panel and other outcomes from advice provided (review 6 monthly)
(PERC) |
|
| Reflect on approaches to involving underrepresented communities to understand what works and what doesn’t for each community
(PERC & PERC Community Panel) |
Capture reflections on ways of working with communities in reports/case studies/blogs (review 6 monthly)
(PERC) |
|
Involve underrepresented communities in ICHT projects relevant to them e.g.
(ICHT) |
Capture reflections on ways of working with communities in reports/case studies/blogs
Record feedback and learnings to share on project impacts (both positive and negative) from ICHT and the community perspective (ICHT and communities involved in ICHT projects) |
|
| b) Facilitate approaches to the involvement of underrepresented and under-served groups in BRC research | Run regular People’s Research Cafes (PRC) co-hosted in community spaces where BRC researchers can bring their projects for PPIEP feedback
(PERC & BRC researchers) |
Collect:
Record impact on research projects and researchers through a blog or other publishable format (BRC Researchers) |
| Co-host community outreach events with Imperial clinical/research speakers to raise awareness of research
(BRC Researchers/Imperial clinicians & PERC) |
Record community outreach event metrics including:
(PERC) |
|
| Collaborate with others working with young people to deliver events where BRC researchers can bring their projects for PPIEP feedback (PERC & Imperial collaborators) | Collect:
(Review 6 monthly) (PERC & Imperial collaborators) Share impact on research projects and researchers through a blog or other publishable format (Review 6 monthly) (BRC Researchers) |
|
| c) Share PPIEP opportunities widely across our population to reach wider audiences | Facilitate the sharing of PPIEP opportunities widely including through existing networks (e.g., Young People’s Advisory Network, PERC mailing list, Community Partners, Third sector organizations) (PERC) | Collect
(Review annually) (PERC) |
-
To promote equality, diversity, and inclusion (EDI) in public involvement, engagement and participation in BRC research
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Understand full diversity data for those participating in our involvement, engagement, and activities | Develop systems to collect age, ethnicity, gender, disability, geographical location to derive Index of Multiple Deprivation (IMD)) and data, of those applying to and involved in BRC public involvement and engagement activities with a view to ensuring that individuals recruited to these activities reflect our population
Increase diversity within those participating in our involvement and engagement, activities from end of 2023 baseline, by mid-2027, if baseline data is not representative of the local population. Understand the acceptability of collecting wider demographic data (e.g., religion, sexual orientation, gender reassignment) in the context of public involvement by:
(PERC) |
|
-
To build capacity and confidence in BRC researchers to enable them to involve the public in research
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Provide each BRC Theme with PPIEP support, guidance, oversight, and training | Nominate two Theme PPIEP Theme Leads (see Appendix A) to work closely with PERC
(BRC Theme Leads) |
|
Assign a Public Involvement Officer to each Theme to:
(PERC) |
|
|
| Theme leads require Theme researchers to undertake online PPIEP training and evidence completion to BRC Office (Theme leads) |
|
|
| Through support, mentoring, and training of researchers, address the need for partnership in PPIEP to minimize the power imbalance between researchers and the public (PERC) |
|
|
| Co-deliver sessions on PPIEP with public contributors for Imperial Students (PERC) |
|
|
| b) Promote, maintain, and develop PPIEP training, resources, and tools | Maintain online PPIEP resource hub with up-to-date training, templates, resources, guidance, and best practice examples in line with the latest recommendations from NIHR and associated bodies (PERC)
Promotion of PERC PPIEP Resource Hub to BRC researchers by Theme PPIEP leads, BRC Office (including referencing in applications for pilot funding calls and internal communications) (Theme PPIEP Leads & BRC Office) Research governance committees to include reference to PPIEP resources in their application forms to access data (BRC Office/research governance chairs) |
(Theme PPIEP Leads & BRC Office)
(PERC)
(Theme Leads & BRC Office)
(research governance committee leads) |
| c) Upskill researchers or clinicians on participatory research and PPIEP for use in their research | Host two 6-month placements for research and/or clinical staff to train in PPIEP/participatory research methods
(PERC) |
(BRC Researchers) |
-
To build capacity and confidence in the public to enable them to be involved and take part in our research
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Increase PPIEP knowledge and skills through provision of training, resources, mentoring, networking, and support | Provide training, resources, and updates to Community Partners and public contributors on public involvement in research (PERC) |
|
| Support and mentor public contributors to undertake PPIEP as required (PERC) |
|
|
| Host at least one event annually for Community Partners to network, share experiences, and facilitate relationship building (PERC) | Collect
|
-
To collaborate with key stakeholders locally and nationally undertaking PPIEP in health research
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Collaborate within Imperial, NWL, and nationally in order to share information and learning related to PPIEP and maximize PPIEP collaboration | Continue to facilitate involvement and engagement meetings with Imperial College and ICHT partners (PERC)
Attend relevant meetings with collaborators across NWL and nationally (PERC) |
|
-
To ensure public involvement activities are systematically evaluated and opportunities for reciprocal feedback are provided
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Facilitate reciprocal learning from public involvement through feedback to inform overall impact | Provide verbal or written feedback to public contributors who advise on each project in a timely manner (within 3 months of the PPIEP advice) (BRC Researchers) |
|
|
Public contributors provided with opportunities to share their feedback of involvement by their preferred method to inform impact of public involvement (PERC) |
|
-
To embed the UK Standards for Public Involvement across all BRC Themes and projects
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Ensure tools, resources & training consider UK Standards for Public Involvement | Utilize the PERC-developed UK Standards for Public Involvement Self-Assessment Tool to regularly monitor Theme activity against the UK Standards for Public Involvement
(Theme PPIEP Leads & Community Partners) |
(Theme PPIEP Leads with the support of PERC) |
-
To collect and share the impact of public involvement
| What we will do | How we will do it (who) | How we will measure progress (who) |
|---|---|---|
| a) Collect impact of public involvement in BRC projects | Require completion of:
(BRC Researchers) |
(Review 6 monthly) (PERC) |
| Publish blogs posts about the process, experience, and impact of public involvement on the PERC blog
(BRC Researchers/public contributors) |
Number of blog posts published (Review annually) (PERC) | |
| b) Facilitate ways of sharing the process and impact of public involvement | Host at least one annual event for BRC researchers, Community Partners & public contributors to showcase public involvement in research examples to celebrate these and motivate others
(PERC with support of BRC Office) |
Collect:
(Review Annually) |
| Bring Theme PPIE leads together at least twice per year to collaborate, share good practice, and raise issues
(PERC) |
Collect
(Review Annually) |
|
| c) Include examples of public involvement in communications about BRC research | Facilitate inclusion of public involvement in all communications outputs about BRC research and where appropriate, include public voices
(BRC/ICHT Communications staff/BRC Office) |
Record number of BRC research communications outputs referencing public involvement (Review 6 monthly) (BRC Office) |